It’s been a few days since my last entry, and that’s because I’ve had so much going on with my baby boy’s health. It seems like it’s one thing, after another, after another and there have been so many specialists and tests and more to come.
It feels like it’s just been one big whirlwind.
I’m sure you are all scratching your heads wondering what I’m talking about. There’s just so much to tell. From him refusing to breastfeed and gain weight, having swollen lymph nodes for over 2 months, the crying and fussiness, and knowing your baby generally feels ill – its very frustrating. Add to that potential seizure activity, and it creates a recipe for madness. Add on top of that the idea that your pediatrician is concerned enough to test for cancer, and you’ve got one completely broken down mama. His daddy and I are just beside ourselves right now.
From cranial ultrasounds, to neurology appointments, to an upcoming overnight EEG at the children’s hospital, to blood work screening him for cancer (you have no idea how scared I am about that – that testing happens today); from gastroenterology appointments, to feeding studies, aspiration studies, new medications and more, my life hangs in the balance of chaos. I have to be strong for my baby boy and we need to get to the bottom of whatever is going on.
If you could please keep my son, Richi, in your thoughts and prayers, as well as our whole family during this difficult time, I would so appreciate it.
I will update as I can.
Thank you all! xo